Tuesday, June 14, 2016

June is Scleroderma Awareness Month

This post was sponsored by Scleroderma as part of an Influencer Activation for Influence Central.


When you hear the word "Scleroderma," what do you think of?  Honestly, I had never heard of Scleroderma before my mother-in-law mentioned that she suffered from it.  Even after she described the symptoms she suffered from, I still didn't have a full understanding of what this autoimmune disease was, or how many people suffer from it.

Honestly, it still is such an unknown disease.  I have only ever heard it referred to by members of my husband's side of the family.  More research needs to be done to understand this disease, and to find a cure.  The only way for researchers to get the resources they need is to spread the word.  The more people that know about this disease, then more of a push for research will happen.

The symptoms can be staggering ranging from calcium deposits to muscle and joint pain to fatigue.  This can be incredibly scary when someone is first diagnosed, not knowing exactly what the disease is about.  It certainly is not as common as heart disease or high blood pressure.

Spreading the word that June is Scleroderma Awarenss Month seemed like a no-brainer to me.  Any more attention that we can bring to this disease is important.



Scleroderma is a disease that typically affects women between the ages of 30 and 50 and has no known cause or cure.  I was surprised to learn that 80% of the people that have this disease are women.

We definitely do not want people to feel isolated when they are diagnosed with this disease.  There are treatment centers and support groups available.   If you suffer from this disease, you should know that you are not alone.  

I challenge you to take the pledge to spread awareness of this disease this month.  Will you take a moment to sign the pledge here?  And visit the Thunderclap below to spread the word on how we can fight this disease together?

20 comments:

  1. I knew of someone who had it once but honestly, I had no idea what it even was.
    Sharing this! Knowledge is power and the earlier you can get help the better the prognosis.

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  2. It's AWFUL when someone you love suffers from such a rare condition. Our son-in-law suffered from a little-know autoimmune disease called Antiphospholipid Syndrome, so I completely understand. It's good that you're raising awareness!

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  3. It's AWFUL when someone you love suffers from such a rare condition. Our son-in-law suffered from a little-know autoimmune disease called Antiphospholipid Syndrome, so I completely understand. It's good that you're raising awareness!

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  4. Thanks for sharing this, I really didn't know what it was either. Great post!

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  5. Thank you for this. It is so important to get info on auto-immune disorders out there. I suffer from a rare AI and it took so long to get diagnosed and get information to help me. The more information out there the faster people can get help and relief

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  6. I had heard of Scleroderma but did not know much about it. I have autoimmune rheumatoid arthritis so my immune system attacks my joints. Hugs to your mother in law and to you for raising awareness for this importance cause. I know when I was diagnosed I felt very alone, it's not a common disease. But as a group autoimmune diseases are becoming more common and life-changing.

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  7. I had never heard of Scleroderma before reading your post. Thank you for sharing this and spreading awareness! I hope your Mother-In-Law is doing well and finding support.

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  8. I had never heard of Scleroderma. It sounds awful... I'm sorry for mother in law. Thank you for raising awareness!

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  9. I didn't know anything about this. It is good to learn more about it, thank you for sharing!

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  10. I had not heard about this before and I am glad you have brought awareness to this so people like me can be more educated on it and share with others who also do not know about Scleroderma

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  11. I've never heard of it really and didn't even know this was their awareness month. Well it's a great way to bring awareness to something that much don't know about.

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  12. Thanks for sharing. I haven't heard of this one, but it seems a lot like my R.A. and fibromyalgia. I have a friend with Raynaud's

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  13. This isn't something I've ever heard of. Thanks so much for sharing about this and helping to increase my awareness.

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  14. Ok so this is definitely a first for me hearing of scleroderma. Thanks for the awareness!!!! Now I know what's up ;-)

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  15. Wow. I have never heard of this... sounds super scary! I cant believe the casuse is unknown. Hopefully, this helps.

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  16. I've heard the word before, but I never knew what it actually was! So scary that some many diseases/disorders, the cause is unknown!

    http://fabulousinfayette.com

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  17. I have never heard of this before but what a scary disease! Auto-immunes really frighten me. I have celiac and the fact that my body can fight itself is just frightening! I can't believe that this disease has an unknown cause.

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  18. We had someone with Scleroderma come and speak in one of my college classes (about 20 years ago), and I've supported the foundation for awhile. It is terrifying and seems so isolating and confusing. I'm glad you're sharing about it.

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  19. I had never honestly heard of this until I read your post. It sounds like such a scary thing to have since the body is preying on itself in a sense. Here's to hoping that more people get aware of it and the cause can be figured out!

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  20. I learn something new each day as I interact with bloggers. Thanks for the lesson

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